Pain in the Endo

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September is pain awareness month

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September is pain awareness month

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If you want to reach out to me or follow my journey else where you’ll find me on the following:

Instagram: @pain.in.the.endo

Email: more.than.endo@gmail.com

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September is pain awareness month

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I found out accidentally that one of the most iconic women to ever have lived, had Endometriosis. A few years ago I went to a Marilyn exhibition in Amsterdam, and I left with an education I hadn't been anticipating. I stumbled upon a note she had attached to her stomach ahead of surgery, asking for her reproductive organs to be spared. Marilyn suffered miscarriages and ectopic pregnancies due to server endometriosis. She developed a drug addiction to help cope with pain, in all its forms. Today her story rings true to thousands of women. I'd never heard or read any of this before, I'd never heard Marilyn's name mentioned in the same sentence as endometriosis and at this point I, myself was not yet diagnosed. I felt a deep routed connection, an empathy and an understanding that back then I couldn't comprehend. I felt such sorrow for the pain she had endured, and how hard it must have been to write that note and attach it to her stomach... With nothing but hope. Marilyn died aged 36 in the early 60s, back then I get the lack of awareness and education towards Endo. Today, I don't. #marilyn #marilynmonroe #endometriosis #endo #endowarrior #endowarriors #icon #hollywood #60s #1in10 #invisableillness #chronicpain #chronicillness #nocure #letter #surgery #exhibition #ectopicpregnancy #miscarriage #awareness #education #knowledge #research #spoonie

Endometriosis isn't a one size fits all, it's in fact quite the opposite. That's what seems to have made progression towards a cure so difficult, no two endo sufferers have the same pain, symptoms or experience. Some people can live with the disease and it have little to no impact on their lives; whilst for others Endo can impact every single aspect of their lives. I know endo warriors who hold down so much more than some of the healthiest and ambitious people in my life, I know other endo warriors who have been bedbound for long periods of time. I know of warriors who are climbing mountain and of warriors that are struggling to breathe and simply cannot put one foot in front of the other. Endometriosis looks different to all of us, as any chronic illness does. Don't compare your journey to others! #onesizefitsall #different #unique #gogetter #difference #journey #warriors #endometriosis #endo #endowarrior #endowarriors #1in10 #invisableillness #chronicpain #chronicillness #chronicallyawesome #chronicallyfabulous #spoonie #spoonielife #womenshealth #women #united #disabled #ablebodied

Our journey's to diagnosis are all different. If you're currently on that journey I hope your is a relatively short one, I hope you are listened to and heard! The average diagnosis time for Endometriosis is 7-10 years, and my personal journey took longer than that. I spent a huge chunk of my life being forced to believe either my body or what the doctors where telling me. I was forced into believing I had created all my pain, symptoms and experiences in my head. I was forced to invalidate myself, my illness and my journey. I was backed into a corner and told time and time again I was fit and well. The only thing doctors could agree on. I silenced my thoughts, opinions and intuition for too long. I had my first laparoscopy seven years before my second laparoscopy ever found my illness. I wasn't believed under the NHS, I even had countless ultrasounds cancelled against my will because they were unwilling to continue scanning a fit and healthy lady. I took hormones blindly for years, believing this would fix my problems. Then one day I woke up and couldn't take the life I'd been living any more. I couldn't live a lie, I knew deep down I was ill and I've spent the past year and a half proving so. A diagnosis doesn't change everything, but it gives you some validation that eases up the mental strain you have previously been forced under. It gives your illness a name. You have to be your own advocate and not blindly follow the path your doctors force you down. You know your body better than anyone else, and the only way that waiting times for diagnosis will shorter is with more awarness, more advocates and sharing of knowledge and experience ✌️ Happy Monday 💛 #diagnosis #journey #storytelling #advocate #advocacy #knowledge #education #awareness #research #endometriosis #endo #endowarrior #endowarriors #1in10 #invisableillness #chronicpain #chronicillness #nocure #chronicallyawesome #chronicallyfabulous #spoonie #spoonielife #Monday #womenshealth #bethechange

You shouldn't have to get it, to understand it. I used to be social Sally, I used to do what I wanted when I wanted and could exist on minimal sleep. There's a lot of things I used to do, but now I can't. And yes it makes me feel guilty. Guilty on my family who make plans and have to cancel them multiple times, guilty on my husband because nothing ever seems to go as we'd planned, guilty on my friends when I'm forced to send that message knowing I've sent it before. It's not nice feeling like a constant disappointment, but it's even harder to deal with the consequences of pushing myself too far. I'm 29 and I cried today because my joints hurt so much, that today the stairs scared me. I do everything within my power to make my chronic illnesses heal, but they don't. And the only person that physically has to adapt to that is me. My circle has to try and understand it, and because they see my struggle they do everything within their power to try and remove the guilt from me, to adapt to cancelled plans and create comfortable plans or just accept that I can't leave the house for all the love in the world. #notsorry #sorry #thisisme #cancelled #plans #endometriosis #endo #endowarrior #endowarriors #1in10 #invisableillness #chronicpain #chronicillness #chronicallyawesome #chronicallyfabulous #spoonie #spoonielife #Support #circle #pain #hypermobility #Fibromyalgia #husband #family #friends #understanding

I dread my period at the best of times, but recent months each time it appears it breaks me a little more. It reminds me of what I am not and pushes our dreams a little further into the distance. I've not spoken about this for obvious reasons, I really don't want to add any more stress onto myself or my partner. But none of this has been easy. I just had a fairytale image in my head, that everything would fall together exactly when we wanted it to. I'm going to start being more open and honest about the journey I'm really on, and hope this takes away some of the stresses I keep internalising. Referal pending back to my Endometriosis specialist. Baby E, we just can wait to make you 💛 #fertility #pregnancy #period #menstruation #journey #storytelling #endometriosis #endo #endowarrior #endowarriors #1in10 #invisableillness #chronicpain #chronicillness #chronicallyawesome #chronicallyfabulous #womenshealth #stress #nature #babye #dreams #baby #honesty

Last week my work pals kindly gifted me a beautiful session with a very talented woman for some reflexology and a massage. When I entered the lady approach me about endometriosis, it was so refreshing to see a practitioner had done a little research into my illness before I arrived and without me mentioning it. It was an amazing session with some added cupping. Problem areas in my reflexology rose around my jaw, my stomach but particularly my left side of my stomach. This is where I experience the most pain, and I could feel it in my foot as pressure was applied. Tonight I start a six week course of receiving reflexology and I'm super excited for this journey! You're feet have thousands of nerve endings and prove that everything is connected. #reflexology #holistichealth #holistichealing #feet #nerves #connection #journey #beginning #healing #endometriosis #endo #endowarrior #endowarriors #1in10 #invisableillness #chronicpain #chronicillnesa #chronicallyawesome #chronicallyfabulous #spoonie #spoonielife #painmanagement #healer

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